The NIH’s abrupt dismissal of grant renewal applications for rare disease consortia — including the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) — is drawing sharp criticism from the AAAAI and patient advocacy groups. The decision, based on a minor technicality rather than scientific merit, threatens to dismantle critical research infrastructure and halt life-saving work for patients with eosinophilic gastrointestinal diseases. Advocates are urging Congress to intervene, warning that the move sets a dangerous precedent and will directly harm patient care and innovation.
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